Sunday, June 29, 2014

Why it took the efforts of seven "lives unworthy of full life" to finally bring penicillin to the rest of us ...

The selfless five of The Seven


Regard closely , if you will, the personal circumstances of Dr Martin Henry Dawson, his teacher wife Marjorie Dawson, doctors Dante Colitti and Thomas Hunter, industrialist Floyd Odlum.

For none of these five (out of the total of seven key - and handicapped - individuals who brought us all penicillin) actually needed penicillin in the early 1940s .

All would have had extra-privileged access to the scarce medication if they had needed it.

So their actions were purely of agape love for others, rather than as part of a patients' advocacy group.

So why were these few , a mere one out of five hundred million of all the people living on the planet in 1943 - so willing to "Act Up" to see that all those dying for lack of wartime penicillin should receive some of the new lifesaver ?

I am convinced that they responded  personally - at a deep empathetic level  - against the then fashionable eugenic arguments about why the lives of SBE patients were intrinsically unworthy of scarce lifesaving penicillin.

To be Modern was to be Eugenic 


It was then fashionable in that besotted - modern - eugenic - age to argue that these 4Fs , born with intellectual and physical challenges and even those who acquired them later in life, were unworthy of the full lives granted to those who was 1A in mind and body.

(This intellectual net thus swept up almost all those (poor or minority) members of society who caught infectious diseases by claiming they had a defective gene that made them get these diseases.)

These "handicapped" or "crippled" members of society might be denied an education, or an fair access to jobs or marriage and children or medical care.

Ultimately some of these handicapped were even denied access to Life itself  - murdered by an direct injection as in Nazi Germany or murdered by quiet but deliberate indirect neglect --- as in the rest of the world.

The then popular prejudice - at both the official and popular level against people who wore glasses  ("four eyes")  - a category that ultimately most of us fits into at some time in our lives  - suggests some of the strength of this 'modern era' insanity seeking impossible physical perfection.

Or take "The Greatest Canadian Ever", Baptist minister and socialist politician Tommy Douglas.

He is regarded as the Father of Canadian Medicare -  a lifetime spent promoting that cornerstone of Canada's present day egalitarian values : full medical care provided to all Canadians regardless of their social status.

But surprisingly, eighty years ago, this young University of Chicago PhD student in sociology (and at the height of the Great Depression in particularly badly hit Saskatchewan !) still chose an eugenic over a political or economic explanation to account for why so many were living on welfare in his home town of Weyburn.

His highly divisive eugenic values was probably entirely typical of his age group and class in the Canada of the 1930s, just as his later egalitarian values were equally in tune with the egalitarian Canada of the 1980s.

In the 1930s, Douglas seemed to regard almost any physical handicap in the children he visited as something not just genetic and eternal but as a marker of darker moral failings.

But when this net of "handicapped-ness as a symbol for useless and less than fully human" was cast so wide, most should have said to themselves, "they're coming after the SBEs today, but they'll be after all those with congenital or acquired chronic defects tomorrow."

But the world did not - but these five did.

Dawson and his wife had met as fellow wallflowers at a college dance in the dance-obsessed Twenties.

Dawson had been a champion basketball guard as a teen but being twice severely wounded during the war had left him missing the use of one Great Toe and with restricted movement in one arm and shoulder.

Marjorie had been born with a relatively common defect in one hip.

The severity of the condition varies greatly - in her case , despite the best operations money could buy in the Edwardian age - she was left with severe restrictions on her movements , sometimes requiring the use of a cane.

But she was intellectually smarter than others and emotionally livelier as well - but these bonuses didn't compensate for her physical failings in this physical perfection obsessed age.

Dawson had acquired, in late 1940, a severe and probably quickly terminal case of Myasthenia Gravis , then a horribly debilitating chronic disease.

Death usually came from respiratory 'crises' and so he often needed a wheelchair and oxygen assist to get about.

Floyd Odlum had been healthy all his life until his worries over the course of the war gave him an unusual severe case of chronic rheumatoid arthritis , so severe that for the rest of his life only his time in a warm pool ever gave him body and mind some relief.

He walked with crutches, mostly , from then on.

Thomas Hunter had severe polio at an early age - leaving him paralyzed from the waist down and requiring the use of crutches.

Despite this, he was not just a star pupil but also very active in student affairs - including coxing race-winning crews at Harvard and Cambridge.

Dante Colitti came from a poor Italian family living in the crowded Lower East Side - he got TB as a child that went into his spine , leaving him a hunchback and requiring braces and crutches.

He spent years in hospitals and came to admire doctors and their roles.

His hunchback, his Catholicism and his Italian origin held him back in that many-prejudiced age , but he persisted and became a surgeon , though he eventually found he was more useful and much more valued as an unusually skilled anesthetist.

Noteworthy is that none of these five had a normal vocational reason to be involved in penicillin and in treating a heart condition .

They all stepped out of their comfort zone to do good , I believe , because they knew personally what it was like to be handicapped and to feel society's eyes upon them.

And they could all feel in their own bones just how the poor SBEs felt when they were handed their death sentences by an uncaring and eugenic Allied medical establishment ....

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